IRB perspectives on the return of individual results from genomic research (Q36383476)

13 August 2017

IRB perspectives on the return of individual results from genomic research (English)

1 reference

institutional review board

13 August 2017

1 reference

Eric Juengst

9

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author name string

Lynn G Dressler

1

1 reference

13 August 2017

Sondra Smolek

2

1 reference

13 August 2017

Roselle Ponsaran

3

1 reference

13 August 2017

Janell M Markey

4

1 reference

13 August 2017

Helene Starks

5

1 reference

13 August 2017

Nancy Gerson

6

1 reference

13 August 2017

Susan Lewis

7

1 reference

13 August 2017

Nancy Press

8

1 reference

13 August 2017

Georgia L Wiesner

10

1 reference

13 August 2017

GRRIP Consortium

11

1 reference

13 August 2017

language of work or name

English

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publication date

5 January 2012

1 reference

13 August 2017

1 reference

13 August 2017

14

1 reference

13 August 2017

2

1 reference

13 August 2017

215-222

1 reference

Attitudes toward genetic research review: results from a survey of human genetics researchers

13 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Charting a course for genomic medicine from base pairs to bedside

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Researcher Practices on Returning Genetic Research Results

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Disclosure of research results from cancer genomic studies: state of the science

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

IRB Chairs' Perspectives on Genomics Research Involving Stored Biological Materials: Ethical Concerns and Proposed Solutions.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

The law of incidental findings in human subjects research: establishing researchers' duties

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Incidental findings in genetics research using archived DNA

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Understanding incidental findings in the context of genetics and genomics

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Managing incidental findings in human subjects research: analysis and recommendations

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Communicating the results of clinical research to participants: attitudes, practices, and future directions

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Letting the gene out of the bottle: a comment on returning individual research results to participants

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Disclosing individual genetic results to research participants

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

The incidentalome: a threat to genomic medicine

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Ethical issues arising from the participation of children in genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Disclosing individual results of clinical research: implications of respect for participants

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Professional integrity in clinical research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Human genome research and the public interest: progress notes from an American science policy experiment

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Medicine. Reestablishing the researcher-patient compact.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Thresholds and boundaries in the disclosure of individual genetic research results.

21 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

ELSI priorities for brain imaging

21 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.10

Human genome 10th anniversary. What would you do?

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

Implications of Disclosing Individual Results of Clinical Research

21 October 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.10

Obligations in Offering to Disclose Genetic Research Results

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.10

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3493147

5 December 2018

Identifiers

DOI

10.1038/GIM.2011.10

1 reference

13 August 2017

1 reference

13 August 2017

PubMed publication ID

22241094

1 reference