Genomic research and wide data sharing: views of prospective participants (Q28742349)

2

Stephanie M Fullerton

0 references

Wylie Burke

6

Wylie Burke

0 references

Susan B. Trinidad

1

Susan Brown Trinidad

0 references

Gail P. Jarvik

4

Gail P Jarvik

0 references

Julie M Bares

3

Julie M Bares

0 references

author name string

Eric B Larson

Forty-three loci associated with plasma lipoprotein size, concentration, and cholesterol content in genome-wide analysis

5

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language of work or name

English

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publication date

August 2010

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published in

Genetics in Medicine

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volume

12

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issue

8

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page(s)

486-95

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cites work

1 reference

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17 March 2017

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DNA data sharing: research participants' perspectives

17 March 2017

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17 March 2017

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Three approaches to qualitative content analysis

17 March 2017

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Public and biobank participant attitudes toward genetic research participation and data sharing

7 April 2017

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Public opinion about the importance of privacy in biobank research

3 June 2018

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The ethical use of existing samples for genome research

3 June 2018

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Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors

3 June 2018

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Different patterns of cerebral injury in dementia with or without diabetes

3 June 2018

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Public attitudes to the storage of blood left over from routine general practice tests and its use in research.

3 June 2018

1 reference

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The uneasy ethical and legal underpinnings of large-scale genomic biobanks

3 June 2018

1 reference

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Field notes and theoretical memos in grounded theory

3 June 2018

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Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project

3 June 2018

1 reference

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Sample bias among women with retained DNA samples for future genetic studies

3 June 2018

1 reference

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Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience

3 June 2018

1 reference

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Genetic variation and willingness to participate in epidemiologic research: data from three studies

3 June 2018

1 reference

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Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3045967

Patients' attitudes towards sharing their health information

3 June 2018

1 reference

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Potential harms, anonymization, and the right to withdraw consent to biobank research

3 June 2018

1 reference

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Research with stored biological samples: what do research participants want?

3 June 2018

1 reference

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An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future

3 June 2018

1 reference

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Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3045967

Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3045967

The use of medical records in research: what do patients want?

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3045967

Patients' consent preferences for research uses of information in electronic medical records: interview and survey data

3 June 2018

1 reference

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Informed consent for genetic research on blood stored for more than a decade: a population based study

3 June 2018

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The debate over research on stored biological samples: what do sources think?

3 June 2018

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Public attitudes regarding the donation and storage of blood specimens for genetic research

3 June 2018

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Human tissue research in the genomic era of medicine: balancing individual and societal interests

3 June 2018

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Whatever happened to qualitative description?

3 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3045967

Patient participation in research in the managed care environment: key perceptions of members in an HMO

3 June 2018

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3 June 2018

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Qualitative research. Introducing focus groups

3 June 2018

1 reference

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Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.

3 June 2018

1 reference

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Research on stored biological samples: views of African American and White American cancer patients.

21 January 2018

1 reference

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Attitudes and perceptions of patients towards methods of establishing a DNA biobank.

21 January 2018

1 reference

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Consent to the use of stored DNA for genetics research: a survey of attitudes in the Jewish population.

21 January 2018

1 reference

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Public willingness to participate in and public opinions about genetic variation research: a review of the literature

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181E38F9E

Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181E38F9E

Subjects matter: a survey of public opinions about a large genetic cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181E38F9E

Dementia and Alzheimer disease incidence: a prospective cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181E38F9E

Serum cholesterol and risk of Alzheimer disease: a community-based cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181E38F9E

Trust in health research relationships: accounts of human subjects

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20535021

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Confidentiality in genome research

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20535021

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Patients, privacy and trust: Patients’ willingness to allow researchers to access their medical records

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20535021

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1097/GIM.0B013E3181E38F9E

1 reference

Dimensions Publication ID

3663856

1034625577

0 references

3663856

1 reference

1 reference

1 reference