Sharing health data for better outcomes on PatientsLikeMe (Q28748833)

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Paul Wicks

object named as

Paul Wicks

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author name string

Michael Massagli

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Jeana Frost

3

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Sally Okun

5

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Timothy Vaughan

6

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Richard Bradley

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James Heywood

Journal of Medical Internet Research

8

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language of work or name

English

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publication date

14 June 2010

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published in

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volume

12

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page(s)

e19

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issue

2

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cites work

Assessing the privacy risks of data sharing in genomics

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

ALS patients request more information about cognitive symptoms

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Information from the Internet and the doctor-patient relationship: the patient perspective--a qualitative study

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Are physicians ready for patients with Internet-based health information?

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Analysis of cases of harm associated with use of health information on the internet

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Effects of internet use on health and depression: a longitudinal study

16 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

E-mail in patient-provider communication: a systematic review.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Older patients' enthusiasm to use electronic mail to communicate with their physicians: cross-sectional survey

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

PatientsLikeMe: Consumer health vocabulary as a folksonomy

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

So much to do, so little time: care for the socially disadvantaged and the 15-minute visit

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Oral antidiabetic medication adherence and glycemic control in managed care.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Babel babble: physicians' use of unclarified medical jargon with patients

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Disclosure of CAM use to medical practitioners: a review of qualitative and quantitative studies

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Learning from e-patients at Massachusetts General Hospital

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Missed appointments and poor glycemic control: an opportunity to identify high-risk diabetic patients

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Partnerships between expert patients and physicians

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Patient adherence to HIV medication regimens: a review of published and abstract reports

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Are patients' office visits with physicians getting shorter?

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956230

Babel Babble: Physicians' Use of Unclarified Medical Jargon with Patients

20 June 2018

1 reference

Informed decision making in outpatient practice: time to get back to basics.

21 January 2018

1 reference

Outcomes research in amyotrophic lateral sclerosis: lessons learned from the amyotrophic lateral sclerosis clinical assessment, research, and education database.

21 January 2018

1 reference

The role of insightful disclosure in outcomes for women in peer-directed breast cancer groups: a replication study.

21 January 2018

1 reference

Fostering empowerment in online support groups

21 January 2018

1 reference

Measuring function in advanced ALS: validation of ALSFRS-EX extension items.

21 January 2018

1 reference

Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com).

21 January 2018

1 reference

The power of social networking in medicine.

21 January 2018

1 reference

Improving the quality of Web surveys: the Checklist for Reporting Results of Internet E-Surveys (CHERRIES).

21 January 2018

1 reference

Communicating the risk of side effects to patients: an evaluation of UK regulatory recommendations

21 January 2018

1 reference

Association of health literacy with diabetes outcomes

21 January 2018

1 reference

Building user involvement in motor neurone disease: key lessons

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20542858

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.2196/JMIR.1549

1 reference

987162

987162

1 reference

1 reference

1 reference