Quality of life and measures of quality of life in patients with neuromuscular disorders (Q30455590)

21 June 2017

title

Quality of life and measures of quality of life in patients with neuromuscular disorders (English)

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21 June 2017

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Christopher D Graham

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Ted Michael Burns

series ordinal

1

object named as

Ted M Burns

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21 June 2017

Michael R Rose

3

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21 June 2017

Zachary Simmons

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4

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21 June 2017

language of work or name

English

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publication date

29 May 2012

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21 June 2017

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21 June 2017

volume

46

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21 June 2017

issue

1

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21 June 2017

page(s)

9-25

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Less is more, or almost as much: a 15-item quality-of-life instrument for myasthenia gravis

21 June 2017

cites work

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The ALSSQOL: balancing physical and nonphysical factors in assessing quality of life in ALS.

21 January 2018

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Errors of measurement affecting the reliability and validity of data acquired from self-assessed quality of life

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The MOS 36-ltem Short-Form Health Survey (SF-36)

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Quality of life complements traditional outcome measures in immune-mediated polyneuropathies

21 January 2018

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21 January 2018

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Understanding the consequences of chronic inflammatory demyelinating polyradiculoneuropathy from impairments to activity and participation restrictions and reduced quality of life: the ICE study

21 January 2018

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Outcome measures in immune-mediated neuropathies: the need to standardize their use and to understand the clinimetric essentials.

21 January 2018

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Randomized controlled trial of intravenous immunoglobulin versus oral prednisolone in chronic inflammatory demyelinating polyradiculoneuropathy.

21 January 2018

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Quality of life in ALS depends on factors other than strength and physical function.

21 January 2018

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Dermatology Life Quality Index (DLQI)--a simple practical measure for routine clinical use.

21 January 2018

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Noninvasive ventilation in ALS: indications and effect on quality of life

21 January 2018

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Who should measure quality of life, the doctor or the patient?

21 January 2018

1 reference

The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales

21 January 2018

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The SEIQoL-DW for assessing quality of life in ALS: strengths and limitations

21 January 2018

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The MG-QOL15 for following the health-related quality of life of patients with myasthenia gravis

21 January 2018

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Quality of life in cancer patients--an hypothesis

21 January 2018

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Integrating response shift into health-related quality of life research: a theoretical model

21 January 2018

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Relationship of the Tufts Quantitative Neuromuscular Exam (TQNE) and the Sickness Impact Profile (SIP) in measuring progression of ALS. SSNJV/CNTF ALS Study Group

21 January 2018

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Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis.

21 January 2018

1 reference

Analysis of health-related quality of life and muscle impairment in individuals with amyotrophic lateral sclerosis using the medical outcome survey and the Tufts Quantitative Neuromuscular Exam.

21 January 2018

1 reference

Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis.

21 January 2018

1 reference

The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe.

21 January 2018

1 reference

EuroQol--a new facility for the measurement of health-related quality of life

21 January 2018

1 reference

Patients' health-related quality-of-life and health state values for motor neurone disease/amyotrophic lateral sclerosis.

21 January 2018

1 reference

Social economic costs and health-related quality of life in patients with amyotrophic lateral sclerosis in Spain

21 January 2018

1 reference

A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile. The Syntex-Synergen ALS/CNTF Study Group.

21 January 2018

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The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients

21 January 2018

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Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5

21 January 2018

1 reference

Validity of the Dutch version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire, ALSAQ-40, ALSAQ-5.

21 January 2018

1 reference

Quality of life and motor impairment in ALS: Italian validation of ALSAQ.

21 January 2018

1 reference

Evaluation of the psychological status of ventilatory-supported patients with ALS/MND.

21 January 2018

1 reference

Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Advance care planning and outcomes

21 January 2018

1 reference

Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers

21 January 2018

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Quality of life following spinal cord injury: knowledge and attitudes of emergency care providers

21 January 2018

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Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis

21 January 2018

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Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time

21 January 2018

1 reference

The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review

21 January 2018

1 reference

The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability

21 January 2018

1 reference

Existential well-being is an important determinant of quality of life. Evidence from the McGill Quality of Life Questionnaire.

21 January 2018

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Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain.

21 January 2018

1 reference

The dynamics of quality of life in ALS patients and caregivers.

21 January 2018

1 reference

A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS.

21 January 2018

1 reference

Development of a direct weighting procedure for quality of life domains.

21 January 2018

1 reference

Individual quality of life in patients undergoing hip replacement

21 January 2018

1 reference

The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW.

21 January 2018

1 reference

Quality-of-life measurement in advanced cancer: assessing the individual.

21 January 2018

1 reference

Measuring subjective quality of life in people with serious mental illness using the SEIqoL-DW.

21 January 2018

1 reference

Individual quality of life in the healthy elderly

21 January 2018

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Assessing individual quality of life in amyotrophic lateral sclerosis.

21 January 2018

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Comparison of instruments addressing quality of life in patients with ALS and their caregivers.

21 January 2018

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Correlates of Quality of Life in people with motor neuron disease (MND).

21 January 2018

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Measuring life quality, physical function and psychological well-being in neurological illness

21 January 2018

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Religiousness is related to quality of life in patients with ALS

21 January 2018

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Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity.

21 January 2018

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Psychological health in patients with ALS is maintained as physical function declines

21 January 2018

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Measuring quality of life: Is quality of life determined by expectations or experience?

21 January 2018

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Meaning in life in patients with amyotrophic lateral sclerosis

21 January 2018

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Multidisciplinary ALS care improves quality of life in patients with ALS.

21 January 2018

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Psychological morbidity in ALS: the importance of psychological assessment beyond depression alone

21 January 2018

1 reference

Experienced fatigue in facioscapulohumeral dystrophy, myotonic dystrophy, and HMSN-I.

21 January 2018

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Quality of life and pain in patients with facioscapulohumeral muscular dystrophy.

21 January 2018

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Quality of life in hereditary neuromuscular diseases.

21 January 2018

1 reference

Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years.

21 January 2018

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21 January 2018

1 reference

What determines quality of life in inclusion body myositis?

21 January 2018

1 reference

The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module

21 January 2018

1 reference

Cutaneous symptoms of dermatomyositis significantly impact patients' quality of life.

21 January 2018

1 reference

Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL).

21 January 2018

1 reference

Italian validation of INQoL, a quality of life questionnaire for adults with muscle diseases

21 January 2018

1 reference

Living with muscular dystrophy: health related quality of life consequences for children and adults

21 January 2018

1 reference

Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease

21 January 2018

1 reference

Long-term outcome in polymyositis and dermatomyositis

21 January 2018

1 reference

21 January 2018

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Functional outcome and quality of life in adult patients with idiopathic inflammatory myositis.

21 January 2018

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Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy

21 January 2018

1 reference

Long-term ventilation for patients with Duchenne muscular dystrophy : physicians' beliefs and practices.

21 January 2018

1 reference

Becker and limb-girdle muscular dystrophies: a psychiatric and intellectual level comparative study.

21 January 2018

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Psychopathological and emotional deficits in myotonic dystrophy

21 January 2018

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Quality of life and well-being of patients with myasthenia gravis.

21 January 2018

1 reference

Correlation between a patient-derived functional questionnaire and abnormal neuromuscular transmission in Myasthenia Gravis patients.

21 January 2018

1 reference

A trial of mycophenolate mofetil with prednisone as initial immunotherapy in myasthenia gravis

21 January 2018

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21 January 2018

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Disease-specific measure of quality of life for myasthenia gravis

21 January 2018

1 reference

Disability and quality of life in Charcot-Marie-Tooth disease type 1.

21 January 2018

1 reference

Diabetic peripheral neuropathy and quality of life

21 January 2018

1 reference

Development of a health-related quality of life measure for peripheral neuropathy.

21 January 2018

1 reference

Measures of chemotherapy-induced peripheral neuropathy: a systematic review of psychometric properties

21 January 2018

1 reference

The association of psychological factors, physical activity, neuropathy, and quality of life in type 2 diabetes

21 January 2018

1 reference

Pain affects the quality of life of neuropathic patients.

21 January 2018

1 reference

Quality of life in patients with axonal polyneuropathy.

21 January 2018

1 reference

21 January 2018

1 reference

Painful diabetic polyneuropathy: epidemiology, pain description, and quality of life

21 January 2018

1 reference

The development and validation of the Norfolk QOL-DN, a new measure of patients' perception of the effects of diabetes and diabetic neuropathy

21 January 2018

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German-translated Norfolk quality of life (QOL-DN) identifies the same factors as the English version of the tool and discriminates different levels of neuropathy severity

21 January 2018

1 reference

Relationship between clinical examination, quality of life, disability and depression in CMT patients: Italian multicenter study.

21 January 2018

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Correlation between clinical/neurophysiological findings and quality of life in Charcot-Marie-Tooth type 1A.

21 January 2018

1 reference

Evidence-based guideline: treatment of painful diabetic neuropathy--report of the American Association of Neuromuscular and Electrodiagnostic Medicine, the American Academy of Neurology, and the American Academy of Physical Medicine & Rehabilitation

21 January 2018

1 reference

The effects of a home exercise program on impairment and health-related quality of life in persons with chronic peripheral neuropathies.

21 January 2018

1 reference

Physical training and fatigue, fitness, and quality of life in Guillain-Barré syndrome and CIDP.

21 January 2018

1 reference

The development and validation of a neuropathy- and foot ulcer-specific quality of life instrument.

21 January 2018

1 reference

Psychosocial issues that face patients with Charcot-Marie-Tooth disease: the role of genetic counseling.

21 January 2018

1 reference

Quality of life in patients with Charcot-Marie-Tooth disease.

21 January 2018

1 reference

Effect of ascorbic acid in patients with Charcot-Marie-Tooth disease type 1A: a multicentre, randomised, double-blind, placebo-controlled trial

21 January 2018

1 reference

Ascorbic acid in Charcot-Marie-Tooth disease type 1A (CMT-TRIAAL and CMT-TRAUK): a double-blind randomised trial

21 January 2018

1 reference

Ascorbic acid for Charcot-Marie-Tooth disease type 1A in children: a randomised, double-blind, placebo-controlled, safety and efficacy trial.

21 January 2018

1 reference

Determinants of reduced health-related quality of life in pediatric inherited neuropathies

21 January 2018

1 reference

Quality of life in children with CMT type 1A.

21 January 2018

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Patients' health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis

21 January 2018

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Spanish adaptation of the Amyotrophic Lateral Sclerosis Questionnaire ALSAQ-40 for ALS patients

21 January 2018

1 reference

Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40

21 January 2018

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Erratum to: A systematic review of quality of life in adults with muscle disease

21 January 2018

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21 January 2018

Identifiers

DOI

10.1002/MUS.23245

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21 June 2017

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