Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study (Q30572149)

21 August 2017

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study (English)

1 reference

21 August 2017

Juli Murphy Bollinger

1

1 reference

21 August 2017

Joan Scott

2

1 reference

21 August 2017

Rachel Dvoskin

3

1 reference

21 August 2017

David Kaufman

4

1 reference

21 August 2017

language of work or name

English

0 references

publication date

8 March 2012

1 reference

21 August 2017

1 reference

21 August 2017

14

1 reference

21 August 2017

4

1 reference

21 August 2017

451-457

1 reference

Population biobanks and returning individual research results: mission impossible or new directions?

21 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Public perspectives on returning genetics and genomics research results

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Disclosure of individual genetic data to research participants: the debate reconsidered

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Preferences regarding genetic research results: comparing veterans and nonveterans responses

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Prospective biorepository participants' perspectives on access to research results

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Disclosure of research results from cancer genomic studies: state of the science

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Public expectations for return of results from large-cohort genetic research

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Ethics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferences

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Managing incidental findings in human subjects research: analysis and recommendations

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Research ethics and the challenge of whole-genome sequencing

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Disclosing individual genetic results to research participants

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Disclosing individual results of clinical research: implications of respect for participants

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

The debate over research on stored biological samples: what do sources think?

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Understanding the low uptake of presymptomatic DNA testing for Huntington's disease

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Relationships with Test-Tubes: Where's the Reciprocity?

14 July 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Protecting communities in biomedical research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Is it ethical to deny genetic research participants individualised results?

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Subjects matter: a survey of public opinions about a large genetic cohort study

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Implications of Disclosing Individual Results of Clinical Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Taking Our Obligations to Research Participants Seriously: Disclosing Individual Results of Genetic Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Questions, Complexities, and Limitations in Disclosing Individual Genetic Results

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2011.66

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3927946

Communication of biobanks' research results: what do (potential) participants want?

26 November 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22402755

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/GIM.2011.66

1 reference

21 August 2017

1 reference

21 August 2017

PubMed publication ID

22402755

1 reference