Communicating the results of clinical research to participants: attitudes, practices, and future directions (Q33334605)

25 July 2017

Communicating the results of clinical research to participants: attitudes, practices, and future directions (English)

1 reference

25 July 2017

David I Shalowitz

1

0 references

Franklin G. Miller

series ordinal

2

object named as

Franklin G Miller

1 reference

PubMed ID

18479180

25 July 2017

language of work or name

English

0 references

publication date

1 May 2008

1 reference

25 July 2017

1 reference

25 July 2017

5

1 reference

25 July 2017

5

1 reference

25 July 2017

e91

1 reference

Creative Commons CC0 License

25 July 2017

start time

13 May 2008

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted, dedicated to the public domain by copyright holder

0 references

cites work

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Attitudes of research ethics board chairs towards disclosure of research results to participants: results of a national survey

21 June 2018

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The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

21 June 2018

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Receiving a summary of the results of a trial: qualitative study of participants' views

21 June 2018

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Informing research participants of research results: analysis of Canadian university based research ethics board policies

21 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

No evidence of false reassurance among women with an inconclusive BRCA1/2 genetic test result

21 June 2018

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Disclosing individual results of clinical research: implications of respect for participants

21 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Impact of presymptomatic genetic testing for hereditary ataxia and neuromuscular disorders

21 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Disclosure of the right of research participants to receive research results: an analysis of consent forms in the Children's Oncology Group.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

21 June 2018

1 reference

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Informing participants of allocation to placebo at trial closure: postal survey

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Does the current consent process minimize the risks of genetics research?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

The debate over research on stored biological samples: what do sources think?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Genetic testing: psychological aspects and implications

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Does mammographic screening and a negative result affect attitudes towards future breast screening?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Impact of DNA testing for early-onset familial Alzheimer disease and frontotemporal dementia

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Psychological consequences of predictive genetic testing: a systematic review

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Reactions of participants to the results of a randomised controlled trial: exploratory study

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

The psychological impact of cardiovascular screening and intervention in primary care: a problem of false reassurance? British Family Heart Study Group

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Genetic testing for colon cancer susceptibility: Anticipated reactions of patients and challenges to providers.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Effects of informing workers of their health risks from exposure to toxic materials

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Reactions of asbestos-exposed workers to notification and screening.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Challenges of worker notification in neurotoxic studies of the central nervous system

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

How does the collection of genetic test results affect research participants?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Offering results to research participants

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Native Hawaiian preferences for informed consent and disclosure of results from research using stored biological specimens.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Unblinding of trial participants to their treatment allocation: lessons from the Prospective Study of Pravastatin in the Elderly at Risk (PROSPER).

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Predictive genetic testing for Alzheimer's disease: impact upon risk perception.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

What's the message? Interpretation of an uninformative BRCA1/2 test result for women at risk of familial breast cancer.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Informing study participants of research results: an ethical imperative.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Impact on survivors of retinoblastoma when informed of study results on risk of second cancers

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Subjects' views about participation in a randomized controlled trial.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Informing subjects of epidemiologic study results. Children's Cancer Group.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Issues in notification: reflections of a public health worker

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Assessing quality of life when planning and evaluating worker notification programs: two case examples

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Evaluating the clarity of research reports written for research subjects

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Perception of quality of life before and after disclosure of trial results: a report from the Program on the Surgical Control of the Hyperlipidemias (POSCH).

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

The emergence of an ethical duty to disclose genetic research results: international perspectives

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2375946

Notifying workers at risk: the politics of the right-to-know

31 October 2018

1 reference

12 December 2020

Social aspects of high-risk notification among chromium-exposed workers

1 reference

12 December 2020

Impact of genetic counseling and testing on colorectal cancer screening behavior

1 reference

12 December 2020

Notification of workers about an excess of malignant melanoma: a case study

1 reference

12 December 2020

Risk for bladder cancer. Psychological impact of notification

1 reference

12 December 2020

Do patients participating in clinical trials want to know study results?

1 reference

12 December 2020

Psychological impact of carrier screening for cystic fibrosis among pregnant women

1 reference

12 December 2020

Sharing research results with patients: the views of care-givers involved in a randomized controlled trial

1 reference

12 December 2020

Offering participants results of a clinical trial: sharing results of a negative study

1 reference

12 December 2020

Worker notification: lessons from the past

1 reference

12 December 2020

Methodologic issues in risk communications to workers

1 reference

12 December 2020

The case for worker notification

1 reference

12 December 2020

10.1371/JOURNAL.PMED.0050091

Identifiers

DOI

1 reference

25 July 2017

1 reference

25 July 2017

1 reference

PubMed ID

18479180