Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease (Q36820946)

16 August 2017

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease (English)

1 reference

16 August 2017

0 references

Janet K Williams

2

0 references

Jane S. Paulsen

object named as

Jane S Paulsen

8

0 references

Michael R. Hayden

object named as

Michael R Hayden

7

0 references

author name string

Elizabeth Penziner

1

1 reference

16 August 2017

Cheryl Erwin

3

1 reference

16 August 2017

Yvonne Bombard

4

1 reference

16 August 2017

Anne Wallis

5

1 reference

16 August 2017

Leigh J Beglinger

6

1 reference

16 August 2017

1 April 2008

1 reference

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics

16 August 2017

1 reference

16 August 2017

147

1 reference

16 August 2017

3

1 reference

16 August 2017

320-325

1 reference

Risk Perception and Decision-making Processes in Candidates for Genetic Testing for Huntington's Disease: An Interpretative Phenomenological Analysis

16 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Methodological considerations in the study of genetic discrimination

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

A vision for the future of genomics research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Population screening in the age of genomic medicine

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genomic medicine--a primer

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Major study commencing into genetic discrimination in Australia

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Redefinition: coping with normal results from predictive gene testing for neurodegenerative disorders

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Qualitative research in health care. Analysing qualitative data

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Adults seeking presymptomatic gene testing for Huntington disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Predicting adaptation to presymptomatic DNA testing for late onset disorders: who will experience distress? Rotterdam Leiden Genetics Workgroup

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

A descriptive study of BRCA1 testing and reactions to disclosure of test results

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Prediction of psychological functioning one year after the predictive test for Huntington's disease and impact of the test result on reproductive decision making

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychological costs and benefits of predictive testing for Huntington's disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The human genome exposed: a glimpse of promise, predicament, and impact on practice

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Objective knowledge about Huntington's disease and attitudes towards predictive tests of persons at risk

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Managing and analyzing qualitative data. A description of tasks, techniques, and materials

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Discrimination as a consequence of genetic testing

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Using a Grid for Interpreting and Presenting Qualitative Data

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The motivation of at-risk individuals and their partners in deciding for or against predictive testing for Huntington's disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychosocial impact of predictive testing for Huntington disease on support persons

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Attitudes of persons at risk for Huntington disease toward predictive testing

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic testing for neurologic diseases. A rose with thorns

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Testing for Huntington's disease with support for all parties

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic testing and Huntington's disease: issues of employment

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Discovering fragile X syndrome: family experiences and perceptions.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Individual, family, and societal dimensions of genetic discrimination: a case study analysis

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic privacy laws and patients' fear of discrimination by health insurers: the view from genetic counselors.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Will genetics revolutionize psychiatry?

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Reactions to predictive testing in Huntington disease: case reports of coping with a new genetic status

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic discrimination: perspectives of consumers.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Reluctance to undergo predictive testing: the case of Huntington disease

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Hunting for Huntington's disease.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

5 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1002%2FAJMG.B.30600

A model protocol for evaluating the behavioral and psychosocial effects of BRCA1 testing

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/17948904

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

BRCA1 testing in families with hereditary breast-ovarian cancer. A prospective study of patient decision making and outcomes

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/17948904

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1002/AJMG.B.30600

1 reference

16 August 2017

1 reference

16 August 2017

PubMed publication ID

17948904

1 reference