Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey (Q37222254)

19 August 2017

Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey (English)

1 reference

19 August 2017

0 references

2

Gerry Veenstra

0 references

Jane S. Paulsen

Jane S Paulsen

6

0 references

Jan M Friedman

Jan M Friedman

3

0 references

Joan Bottorff

Joan L Bottorff

7

0 references

Michael R. Hayden

Michael R Hayden

8

0 references

author name string

Yvonne Bombard

1

1 reference

19 August 2017

Susan Creighton

4

1 reference

19 August 2017

Lauren Currie

5

1 reference

19 August 2017

Canadian Respond-HD Collaborative Research Group

9

1 reference

19 August 2017

language of work or name

English

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publication date

9 June 2009

1 reference

19 August 2017

1 reference

19 August 2017

338

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19 August 2017

b2175

1 reference

Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease

19 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Experiences of discrimination: validity and reliability of a self-report measure for population health research on racism and health

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Predictive testing for Huntington's disease: a universal model?

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Multiple comparisons: philosophies and illustrations

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Embodying inequality: a review of concepts, measures, and methods for studying health consequences of discrimination

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Psychological costs and benefits of predictive testing for Huntington's disease

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Some ethical problems in Huntington's chorea

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Discrimination as a consequence of genetic testing

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Managing genetic discrimination: strategies used by individuals found to have the Huntington disease mutation

9 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Impact of genetic testing for Huntington disease on the family system

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

The prevalence, distribution, and mental health correlates of perceived discrimination in the United States

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Exclusion testing for Huntington's disease in pregnancy with a closely linked DNA marker

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Report warns of danger of genetic discrimination in the workplace

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Ethics of predictive testing for Huntington's chorea: the need for more information

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

First-trimester prenatal diagnosis for Huntington's disease with DNA probes

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

US Senate outlaws genetic discrimination

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Self-reported racial discrimination and substance use in the Coronary Artery Risk Development in Adults Study

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Banning genetic discrimination.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Concerns in a primary care population about genetic discrimination by insurers.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Genetic testing and Huntington's disease: issues of employment

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Presymptomatic testing in Huntington's disease and autosomal dominant cerebellar ataxias

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: implications for multidisciplinary counselling and for genetic education.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Unified Huntington's disease rating scale: a follow up.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Genetic discrimination: perspectives of consumers.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Reluctance to undergo predictive testing: the case of Huntington disease

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Attitudes toward direct predictive testing for the Huntington disease gene. Relevance for other adult-onset disorders. The Canadian Collaborative Group on Predictive Testing for Huntington Disease

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Predictive testing for Huntington disease: a psychologist's view

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2694258

Racial discrimination and skin color in the CARDIA study: implications for public health research. Coronary Artery Risk Development in Young Adults

3 September 2018

1 reference

12 December 2020

Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients

1 reference

12 December 2020

Insurance, unfair discrimination, and genetic testing

1 reference

12 December 2020

Health insurance and discrimination concerns and BRCA1/2 testing in a clinic population

1 reference

12 December 2020

Preserving privacy, preventing discrimination becomes the province of genetics experts

1 reference

12 December 2020

Identifiers

DOI

10.1136/BMJ.B2175

1 reference

19 August 2017

1 reference

19 August 2017

PubMed publication ID

19509425

1 reference