Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy. (Q37604269)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

2 March 2020

title

Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy (English)

1 reference

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2 March 2020

2

1 reference

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2 March 2020

5

Barbara B Biesecker

1 reference

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2 March 2020

author name string

Holly L Peay

series ordinal

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

2 March 2020

Tyler Fisher

series ordinal

3

1 reference

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2 March 2020

Ethan Brenna

series ordinal

4

1 reference

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2 March 2020

language of work or name

1 reference

4 December 2013

1 reference

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2 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

2 March 2020

volume

11

1 reference

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2 March 2020

issue

1

1 reference

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2 March 2020

page(s)

77-85

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

Motivations of patients with pulmonary arterial hypertension to participate in randomized clinical trials

2 March 2020

cites work

1 reference

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Assessing research participants' perceptions of their clinical research experiences

23 August 2017

1 reference

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Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents' and physicians' experiences

23 August 2017

1 reference

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Two concepts of therapeutic optimism

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Unrealistic optimism in early-phase oncology trials

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Reasons for participating in randomised controlled trials: conditional altruism and considerations for self

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

How do parents experience being asked to enter a child in a randomised controlled trial?

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Clinical trials and medical care: defining the therapeutic misconception

23 August 2017

1 reference

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Ethical issues in clinical neuroscience research: a patient's perspective

23 August 2017

1 reference

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Safety, tolerability, and pharmacokinetics of PTC124, a nonaminoglycoside nonsense mutation suppressor, following single- and multiple-dose administration to healthy male and female adult volunteers

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Advocacy groups as research organizations: the PXE International example

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

The patient-oriented clinician-researcher: advantages and challenges of being a double agent

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Misunderstanding in clinical research: distinguishing therapeutic misconception, therapeutic misestimation, and therapeutic optimism

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

The invisible hand in clinical research: the study coordinator's critical role in human subjects protection

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Therapeutic misconception: hope, trust and misconception in paediatric research

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Questing for grails: duplicity, betrayal and self-deception in postmodern medical research.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Emotional impact of genetic trials in progressive paediatric disorders: a dose-ranging exon-skipping trial in Duchenne muscular dystrophy

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Enrolling in deep brain stimulation research for depression: influences on potential subjects' decision making

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Vulnerable populations in research: the case of the seriously ill.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

The therapeutic orientation to clinical trials.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

Ataluren as an agent for therapeutic nonsense suppression

1 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1177%2F1740774513512726

Conflict of interest: it is ethical for an investigator to also be the primary care-giver in a clinical trial

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3935382

3 December 2018

Identifiers

DOI

10.1177/1740774513512726

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

2 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json

2 March 2020

PubMed publication ID

24311736

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24311736%20AND%20SRC:MED&resulttype=core&format=json