Children and biobanks: a review of the ethical and legal discussion. (Q37887554)

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4 February 2020

review article

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title

Children and biobanks: a review of the ethical and legal discussion (English)

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:21660506%20AND%20SRC:MED&resulttype=core&format=json

4 February 2020

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1

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4 February 2020

Kris Dierickx

series ordinal

3

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:21660506%20AND%20SRC:MED&resulttype=core&format=json

4 February 2020

author name string

Emmanuelle Lévesque

series ordinal

2

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4 February 2020

publication date

10 June 2011

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4 February 2020

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4 February 2020

volume

130

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4 February 2020

issue

3

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4 February 2020

page(s)

403-413

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Children's consent to research participation: social context and personal experience invalidate fixed cutoff rules

4 February 2020

cites work

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Biobanking in pediatrics: the human nonsubjects approach

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Biobanks: too long to wait for consent

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Ethical issues arising from the participation of children in genetic research

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Pediatric HIV BioBank: a new role of the Spanish HIV BioBank in pediatric HIV research

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Pediatric biobanks: approaching informed consent for continuing research after children grow up.

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Research ethics. Children and population biobanks

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Scientific research is a moral duty

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Children, longitudinal studies, and informed consent.

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Biobanks: oversight offers protection

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The use of diagnostic collections of DNA for research: interviews at the eight Belgian centers for human genetics.

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An exploratory survey of professionals on the use of stored tissue samples from minors for genetic research.

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The return of individual research findings in paediatric genetic research

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The storage and use of biological tissue samples from minors for research: a focus group study

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Does an appeal to the common good justify individual sacrifices for genomic research?

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Solidarity and justice as guiding principles in genomic research

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Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study.

21 January 2018

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Population-based retrieval of newborn dried blood spots for researching paediatric cancer susceptibility genes.

21 January 2018

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Science and society: children and incompetent adults in genetic research: consent and safeguards

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The Avon Longitudinal Study of Parents and Children (ALSPAC): a resource for genetic epidemiology

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Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries

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The biobank of the Norwegian Mother and Child Cohort Study: a resource for the next 100 years

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Is Deidentification Sufficient to Protect Health Privacy in Research?

21 January 2018

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Solidarity and equity: new ethical frameworks for genetic databases

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The Generation R Study: Design and cohort profile

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Ethical framework for previously collected biobank samples

21 January 2018

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Genetic research on stored tissue samples from minors: a systematic review of the ethical literature

21 January 2018

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UK launch "virtual" tumour bank to improve treatment research

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12 December 2020

Declaration of Helsinki. Ethical principles for medical research involving human subjects.

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12 December 2020

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12 December 2020

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12 December 2020

Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research

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12 December 2020

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

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12 December 2020

Parental views on tissue banking in pediatric oncology patients

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12 December 2020

Empirical data about women's attitudes towards a hypothetical pediatric biobank

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12 December 2020

Born in Bradford, a cohort study of babies born in Bradford, and their parents: protocol for the recruitment phase

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Children, biobanks and the scope of parental consent

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12 December 2020

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12 December 2020

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Identifiers

DOI

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:21660506%20AND%20SRC:MED&resulttype=core&format=json

4 February 2020

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