Translating rare-disease therapies into improved care for patients and families: what are the right outcomes, designs, and engagement approaches in health-systems research? (Q38390841)
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scientific article published on 09 April 2015
| Language | Label | Description | Also known as |
|---|---|---|---|
| English | Translating rare-disease therapies into improved care for patients and families: what are the right outcomes, designs, and engagement approaches in health-systems research? |
scientific article published on 09 April 2015 |
Statements
Translating rare-disease therapies into improved care for patients and families: what are the right outcomes, designs, and engagement approaches in health-systems research? (English)
Beth K Potter
Pranesh Chakraborty
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