Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study (Q39422121)

5 November 2017

Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study (English)

1 reference

5 November 2017

1 reference

acute hepatic porphyria

1 reference

5

Robert J Desnick

1 reference

5 November 2017

Hetanshi Naik

1

1 reference

5 November 2017

Mikayla Stoecker

series ordinal

2

1 reference

5 November 2017

Saskia C Sanderson

series ordinal

3

1 reference

5 November 2017

Manisha Balwani

series ordinal

4

1 reference

5 November 2017

24 August 2016

1 reference

Molecular Genetics and Metabolism

5 November 2017

1 reference

5 November 2017

119

1 reference

5 November 2017

3

1 reference

5 November 2017

278-283

1 reference

Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease

5 November 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

An update of clinical management of acute intermittent porphyria

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

15 June 2018

Acute Hepatic Porphyria

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Anthropometric and Quality-of-Life Parameters in Acute Intermittent Porphyria Patients

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Porphyria and its neurologic manifestations

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

The incidence of inherited porphyrias in Europe

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Social interaction experiences of adults with Moebius Syndrome: a focus group

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Factors influencing quality of life in patients with inherited ichthyosis: a qualitative study in adults using focus groups

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Cannabinoids for pain management

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Porphyrias at a glance: diagnosis and treatment

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Modern diagnosis and management of the porphyrias

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Recommendations for the diagnosis and treatment of the acute porphyrias

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Stress and the individual. Mechanisms leading to disease

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Barriers to and motivators for physical activity among people with Type 2 diabetes: patients' perspectives

15 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

How do women with lupus manage fatigue? A focus group study

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Stress and health: major findings and policy implications

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Acute porphyrias: pathogenesis of neurological manifestations

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

A qualitative exploration of barriers and motivators to physical activity participation in women treated for breast cancer.

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Best practice guidelines on clinical management of acute attacks of porphyria and their complications

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Anxiety and depression in the acute porphyrias.

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Clinical and biochemical characteristics and genotype-phenotype correlation in Finnish variegate porphyria patients

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Self-rated psychosocial consequences and quality of life in the acute porphyrias.

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Women's experience of suffering repeated severe attacks of acute intermittent porphyria.

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

Treatment of acute hepatic porphyria with hematin

21 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5083146

21 August 2018

1 reference

https://api.crossref.org/works/10.1016%2FJ.YMGME.2016.08.006

Using thematic analysis in psychology

7 January 2021

1 reference

Crossref

https://api.crossref.org/works/10.1016%2FJ.YMGME.2016.08.006

Prognosis of acute porphyria: occurrence of acute attacks, precipitating factors, and associated diseases

7 January 2021

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/27595545

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1016/J.YMGME.2016.08.006

1 reference

5 November 2017

1 reference

5 November 2017

1 reference