Parents' perspectives on participating in genetic research in autism (Q39588412)

13 September 2017

title

Parents' perspectives on participating in genetic research in autism (English)

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13 September 2017

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Fiona A Miller

9

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Stephen W. Scherer

4

object named as

Stephen W Scherer

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13 September 2017

2

Wendy Roberts

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13 September 2017

5

Rosanna Weksberg

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13 September 2017

Magan Trottier

1

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13 September 2017

Irene Drmic

3

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13 September 2017

Cheryl Cytrynbaum

6

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13 September 2017

David Chitayat

7

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13 September 2017

Cheryl Shuman

8

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13 September 2017

language of work or name

English

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publication date

1 March 2013

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Journal of Autism and Developmental Disorders

13 September 2017

published in

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13 September 2017

volume

43

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13 September 2017

issue

3

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13 September 2017

page(s)

556-568

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What does it mean to trust a health system? A qualitative study of Canadian health care values

13 September 2017

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Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles

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The impact of chronic childhood illness on family stress: a comparison between autism and cystic fibrosis.

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Genetic counseling outcomes: perceived risk and distress after counseling for hereditary colorectal cancer

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Copy-number variations associated with neuropsychiatric conditions

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An investigation of patients' motivations for their participation in genetics-related research

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Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results

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Uncertainty and perceived personal control among parents of children with rare chromosome conditions: the role of genetic counseling

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Attitudes towards clinical research amongst participants and nonparticipants.

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Structural variation of chromosomes in autism spectrum disorder

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Psychological effect of genetic testing for Huntington's disease: an update of the literature

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What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research

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What is a meaningful result? Disclosing the results of genomic research in autism to research participants

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Functional impact of global rare copy number variation in autism spectrum disorders

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Tolerance for ambiguity could influence awareness of breast cancer genetic testing and inform health education

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Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

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The UCLA-University of Utah epidemiologic survey of autism: recurrence risk estimates and genetic counseling.

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Risk factors for autism: translating genomic discoveries into diagnostics

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Strong association of de novo copy number mutations with autism

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Volunteers or victims: patients' views of randomised cancer clinical trials

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The conundrums of understanding genetic risks for autism spectrum disorders

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Ethical implications of array comparative genomic hybridization in complex phenotypes: points to consider in research

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Why do they do it? A pilot study towards understanding participant motivation and experience in a large genetic epidemiological study of endometriosis

21 January 2018

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In search of biomarkers for autism: scientific, social and ethical challenges

21 January 2018

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Drugmakers dance with autism

21 January 2018

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Harrdiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation.

21 January 2018

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How Many Interviews Are Enough?

21 January 2018

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Implications of genetic risk information in families with a high density of bipolar disorder: an exploratory study

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Communication of biobanks' research results: what do (potential) participants want?

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12 December 2020

Offering cystic fibrosis carrier screening to an HMO population: factors associated with utilization.

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12 December 2020

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12 December 2020

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12 December 2020

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12 December 2020

One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants

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12 December 2020

Need for certainty and interest in genetic testing

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12 December 2020

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

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12 December 2020

Perceived personal control (PPC): a new concept in measuring outcome of genetic counseling

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12 December 2020

The perceived personal control (PPC) questionnaire: Reliability and validity in a sample from the United Kingdom

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12 December 2020

Recurrence risk for autism spectrum disorders: a Baby Siblings Research Consortium study

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12 December 2020

Duty, desire or indifference? A qualitative study of patient decisions about recruitment to an epilepsy treatment trial.

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12 December 2020

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Identifiers

DOI

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13 September 2017

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