Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results (Q39976746)

16 September 2017

Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results (English)

1 reference

16 September 2017

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Stefan Eriksson

3

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author name string

Joanna Stjernschantz Forsberg

series ordinal

1

1 reference

PMCID

2987027

16 September 2017

Mats G Hansson

series ordinal

2

1 reference

16 September 2017

27 May 2009

1 reference

European Journal of Human Genetics

16 September 2017

1 reference

16 September 2017

17

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16 September 2017

12

1 reference

16 September 2017

1544-1549

1 reference

https://scigraph.springernature.com/pub.10.1038/ejhg.2009.87

16 September 2017

0 references

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Revisiting Wilson and Jungner in the genomic age: a review of screening criteria over the past 40 years

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Duty to disclose what? Querying the putative obligation to return research results to participants

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Information disclosure in population-based research involving genetics: a framework for the practice of ethics in epidemiology

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

22 September 2017

Do patients have duties?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Clinical trials and medical care: defining the therapeutic misconception

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

For the safety and benefit of current and future patients

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Assessing quality and functionality of DNA from fresh and archival dried blood spots and recommendations for quality control guidelines

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Letting the gene out of the bottle: a comment on returning individual research results to participants

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Disclosing individual genetic results to research participants

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Screening for hereditary hemochromatosis: a systematic review for the U.S. Preventive Services Task Force

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Should donors be allowed to give broad consent to future biobank research?

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Disclosing individual results of clinical research: implications of respect for participants

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Scientific research is a moral duty

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Disclosure of genetic information obtained through research

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Coding and consent: moral challenges of the database project in Iceland.

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Should patients be allowed to veto their participation in clinical research?

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

International ethical guidelines for biomedical research involving human subjects.

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Protecting subjects' interests in genetics research

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Informed consent for population-based research involving genetics

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

What have we learnt from the Alder Hey affair? That monitoring physicians' performance is necessary to ensure good practice

22 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

When do genetic researchers have a duty to recontact study participants?

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Best laid plans for offering results go awry.

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Thresholds and boundaries in the disclosure of individual genetic research results.

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Phenylketonuria screening registry as a resource for population genetic studies

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Rethinking research ethics.

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Tuskegee: could it happen again?

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Ethical framework for previously collected biobank samples

20 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Solidarity and equity: new ethical frameworks for genetic databases

1 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Relationships with Test-Tubes: Where's the Reciprocity?

1 October 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.87

Protecting communities in biomedical research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.87

ELSI priorities for brain imaging

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.87

Implications of Disclosing Individual Results of Clinical Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.87

Obligations in Offering to Disclose Genetic Research Results

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.87

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

The emergence of an ethical duty to disclose genetic research results: international perspectives

2 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2987027

Approaches to DNA/RNA Extraction and whole genome amplification

2 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/19471310

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/EJHG.2009.87

1 reference

16 September 2017

1 reference

16 September 2017

1 reference

PMCID

2987027