The tension between data sharing and the protection of privacy in genomics research (Q26866269)

Annual Review of Genomics and Human Genetics

published in

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volume

13

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issue

1

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page(s)

415-31

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From single biobanks to international networks: developing e-governance

cites work

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Data sharing in genomics--re-shaping scientific practice

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From genetic privacy to open consent

21 March 2017

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DNA data sharing: research participants' perspectives

21 March 2017

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Partnership in U.K. Biobank: a third way for genomic property?

21 March 2017

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Genome-wide association study of 14,000 cases of seven common diseases and 3,000 shared controls

21 March 2017

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Genomics and privacy: implications of the new reality of closed data for the field

21 March 2017

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Data sharing: not as simple as it seems

21 March 2017

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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research

21 March 2017

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Temporal trends in results availability from genome-wide association studies

21 March 2017

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Who shares? Who doesn't? Factors associated with openly archiving raw research data

21 March 2017

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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

21 March 2017

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The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies

21 March 2017

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Assessing the privacy risks of data sharing in genomics

21 March 2017

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Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research

21 March 2017

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Public access to genome-wide data: five views on balancing research with privacy and protection

21 March 2017

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Recommendations from the 2008 International Summit on Proteomics Data Release and Sharing Policy: the Amsterdam principles

21 March 2017

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21 March 2017

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New models of collaboration in genome-wide association studies: the Genetic Association Information Network

21 March 2017

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7 April 2017

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Consent forms in genomics: the difference between law and practice

9 May 2017

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28 September 2017

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28 September 2017

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28 September 2017

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28 September 2017

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Untapped potential: IRB guidance for the ethical research use of stored biological materials

28 September 2017

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28 September 2017

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The charitable trust as a model for genomic biobanks

28 September 2017

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The Human Genome Project: Lessons from Large-Scale Biology

28 September 2017

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Informed consent for population-based research involving genetics

28 September 2017

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The human genome project: past, present, and future

28 September 2017

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On Jim Watson's APOE status: genetic information is hard to hide

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Withdrawing from research: a rethink in the context of research biobanks.

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Potential for revealing individual-level information in genome-wide association studies

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