From patients to partners: participant-centric initiatives in biomedical research (Q27016065)

9

object named as

Deborah Mascalzoni

1 reference

Stephanie M Fullerton

object named as

Stephanie M. Fullerton

5

0 references

Sharon F. Terry

12

object named as

Sharon F. Terry

1 reference

Liam Curren

2

1 reference

Nick Anderson

3

1 reference

Kelly Edwards

4

1 reference

Nadja Kanellopoulou

6

1 reference

David Lund

7

1 reference

Daniel G. MacArthur

8

1 reference

James Shepherd

10

1 reference

Patrick L. Taylor

11

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Stefan F. Winter

13

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language of work or name

1 reference

3 April 2012

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published in

Nature Reviews Genetics

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volume

13

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issue

5

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page(s)

371-6

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The tension between data sharing and the protection of privacy in genomics research

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

From single biobanks to international networks: developing e-governance

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson's disease

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Web-based, participant-driven studies yield novel genetic associations for common traits

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Research ethics and the challenge of whole-genome sequencing

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Genomic research and wide data sharing: views of prospective participants

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Assessing the privacy risks of data sharing in genomics

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm

21 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Power to the people: participant ownership of clinical trial data

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Patients providing the answers: narrowing the gap in data quality for emergency care

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients.

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

The value of healthcare information exchange and interoperability in New York state

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Clinical information systems: instant ubiquitous clinical data for error reduction and improved clinical outcomes

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Using NHS Patient Data for Research Without Consent

28 September 2017

1 reference

Electronic consent channels: preserving patient privacy without handcuffing researchers

21 January 2018

1 reference

Benefits of interoperability: a closer look at the estimates

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3806497

Data Protection and Sample Management in Biobanking - A legal dichotomy.

28 November 2018

1 reference

The diagnosis-related group (DRG) system

31 March 2020

1 reference

Effects of an integrated clinical information system on medication safety in a multi-hospital setting

31 March 2020

1 reference

The value of health care information exchange and interoperability.

31 March 2020

1 reference

The benefits of sharing clinical information

31 March 2020

1 reference

BMA warns against letting patients have access to their electronic records

31 March 2020

1 reference

31 March 2020

Identifiers

DOI

10.1038/NRG3218

1 reference

Dimensions Publication ID

1027704301

0 references

1 reference

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PubMed publication ID

22473380

1 reference