Return of genomic results to research participants: the floor, the ceiling, and the choices in between (Q34000877)

30 July 2017

title

Return of genomic results to research participants: the floor, the ceiling, and the choices in between (English)

1 reference

30 July 2017

author

Stephanie M Fullerton

9

Stephanie M Fullerton

0 references

Wylie Burke

28

Wylie Burke

1 reference

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1

Gail P Jarvik

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Ellen Wright Clayton

5

Ellen W Clayton

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Ingrid A Holm

Ingrid A Holm

13

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Heidi L. Rehm

Heidi L Rehm

18

0 references

Richard R Sharp

19

Richard R Sharp

1 reference

30 July 2017

14

Iftikhar J Kullo

1 reference

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25

Wendy A Wolf

1 reference

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7

Barbara J Evans

1 reference

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11

Nanibaa' A Garrison

1 reference

30 July 2017

23

Marc S Williams

1 reference

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16

Cathy McCarty

1 reference

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2

Laura M Amendola

1 reference

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4

Kyle Brothers

1 reference

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12

Stacy W Gray

1 reference

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20

Joseph Salama

1 reference

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24

Susan M Wolf

1 reference

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Lisa Soleymani Lehmann

15

Lisa Soleymani Lehmann

1 reference

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3

Jonathan S Berg

1 reference

30 July 2017

Wendy Chung

6

1 reference

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James P Evans

8

1 reference

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Carlos J Gallego

10

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Cynthia A Prows

17

1 reference

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Saskia Sanderson

21

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Sara L Van Driest

22

1 reference

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eMERGE Act-ROR Committee and CERC Committee

26

1 reference

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CSER Act-ROR Working Group

27

1 reference

30 July 2017

language of work or name

English

0 references

publication date

8 May 2014

1 reference

American Journal of Human Genetics

30 July 2017

published in

1 reference

30 July 2017

volume

94

1 reference

30 July 2017

issue

6

1 reference

30 July 2017

page(s)

818-826

1 reference

The First Amendment Right to Speak About the Human Genome.

30 July 2017

cites work

1 reference

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5 July 2018

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Return of results: ethical and legal distinctions between research and clinical care

5 July 2018

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Addressing the ethical challenges in genetic testing and sequencing of children

5 July 2018

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Stakeholder views on returning research results

5 July 2018

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Processes and preliminary outputs for identification of actionable genes as incidental findings in genomic sequence data in the Clinical Sequencing Exploratory Research Consortium

5 July 2018

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Actionable, pathogenic incidental findings in 1,000 participants' exomes

5 July 2018

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5 July 2018

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5 July 2018

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Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

5 July 2018

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5 July 2018

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Recommendations for returning genomic incidental findings? We need to talk!

5 July 2018

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ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

5 July 2018

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Point-counterpoint. Patient autonomy and incidental findings in clinical genomics

5 July 2018

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Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing

5 July 2018

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Self-guided management of exome and whole-genome sequencing results: changing the results return model

5 July 2018

1 reference

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Technical report: Ethical and policy issues in genetic testing and screening of children

5 July 2018

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Ethical and policy issues in genetic testing and screening of children

5 July 2018

1 reference

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

5 July 2018

1 reference

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Willingness-to-pay for predictive tests with no immediate treatment implications: a survey of US residents

5 July 2018

1 reference

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Interest in genetic testing for modest changes in breast cancer risk: implications for SNP testing.

5 July 2018

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

5 July 2018

1 reference

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Offering individual genetic research results: context matters

5 July 2018

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5 July 2018

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5 July 2018

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Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

5 July 2018

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5 July 2018

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To test or not to test? The role of attitudes, knowledge, and religious involvement among U.S. adults on intent-to-obtain adult genetic testing

29 October 2018

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29 October 2018

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29 October 2018

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29 October 2018

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29 October 2018

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29 October 2018

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29 October 2018

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29 October 2018

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PubMed

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inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1016/J.AJHG.2014.04.009

1 reference

30 July 2017

1 reference

30 July 2017

1 reference