The meaning of genetic research results: reflections from individuals with and without a known genetic disorder (Q36066767)

12 August 2017

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder (English)

1 reference

12 August 2017

2

Marsha Michie

1 reference

12 August 2017

5

Laura M Beskow

1 reference

12 August 2017

R Jean Cadigan

1

1 reference

12 August 2017

Gail Henderson

series ordinal

3

1 reference

12 August 2017

Arlene M Davis

series ordinal

4

1 reference

12 August 2017

1 December 2011

1 reference

Journal of Empirical Research on Human Research Ethics

12 August 2017

1 reference

12 August 2017

6

1 reference

12 August 2017

4

1 reference

12 August 2017

30-40

1 reference

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

12 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Epilepsy patient-participants and genetic research results as "answers".

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Research participants' perspectives on genotype-driven research recruitment

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

"If I could in a small way help": motivations for and beliefs about sample donation for genetic research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Research ethics. Research practice and participant preferences: the growing gulf.

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Disclosure of individual genetic data to research participants: the debate reconsidered

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Modifier genes in Mendelian disorders: the example of cystic fibrosis

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Offering individual genetic research results: context matters

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Disclosure of research results from cancer genomic studies: state of the science

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Public expectations for return of results from large-cohort genetic research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Duty to disclose what? Querying the putative obligation to return research results to participants

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

The Environmental Polymorphisms Registry: a DNA resource to study genetic susceptibility loci

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

11 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

Donors perceptions of consent to and feedback from biobank research: time to acknowledge diversity?

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3386306

A Closer Look: Are We Subjects or Are We Donors?

21 October 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2011.6.4.30

Genetic modifiers of lung disease in cystic fibrosis

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228058

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Constructing Grounded Theory: A practical guide through qualitative analysis

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22228058

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1525/JER.2011.6.4.30

1 reference

12 August 2017

1 reference

12 August 2017

PubMed publication ID

22228058

1 reference