Epilepsy patient-participants and genetic research results as "answers". (Q36101366)

12 August 2017

Epilepsy patient-participants and genetic research results as "answers". (English)

1 reference

12 August 2017

1 reference

Emily E Namey

1

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Laura Mari Beskow

series ordinal

2

object named as

Laura M Beskow

1 reference

12 August 2017

1 December 2011

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Journal of Empirical Research on Human Research Ethics

12 August 2017

1 reference

12 August 2017

6

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12 August 2017

4

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12 August 2017

21-29

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Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment

12 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Research participants' perspectives on genotype-driven research recruitment

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Disclosure of individual genetic data to research participants: the debate reconsidered

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Offering individual genetic research results: context matters

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Ethical challenges in genotype-driven research recruitment

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Prospective biorepository participants' perspectives on access to research results

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Disclosure of research results from cancer genomic studies: state of the science

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Public expectations for return of results from large-cohort genetic research

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Medical researchers' ancillary clinical care responsibilities

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Subjects matter: a survey of public opinions about a large genetic cohort study

2 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects

23 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3399113

Applied Thematic Analysis

21 October 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2011.6.4.21

21 January 2018

Identifiers

DOI

10.1525/JER.2011.6.4.21

1 reference

12 August 2017

1 reference

PMC publication ID

3399113

12 August 2017

PubMed publication ID

22228057

1 reference

PMC publication ID

3399113