Engaging African-Americans about biobanks and the return of research results (Q36288235)

13 August 2017

Engaging African-Americans about biobanks and the return of research results (English)

1 reference

13 August 2017

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2

Lainie Friedman Ross

1 reference

13 August 2017

Colin Me Halverson

1

1 reference

13 August 2017

28 March 2012

1 reference

Journal of Community Genetics

13 August 2017

1 reference

13 August 2017

3

1 reference

13 August 2017

4

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13 August 2017

275-283

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Reasons for participating and genetic information needs among racially and ethnically diverse biobank participants: a focus group study

13 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Tissue donation to biobanks: a review of sociological studies

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Willingness to participate in clinical trials among African Americans and whites previously exposed to clinical research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Consent for future genetic research: the NHANES experience in 2007-2008.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Patient perspectives on group benefits and harms in genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Evaluation of conceptual framework for recruitment of African American patients with breast cancer

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

The role of race and trust in tissue/blood donation for genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Public opinion about the importance of privacy in biobank research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Utilization of religious coping strategies among African American women at increased risk for hereditary breast and ovarian cancer

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Public expectations for return of results from large-cohort genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Church and spirituality in the lives of the African American community

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Communicating the results of clinical research to participants: attitudes, practices, and future directions

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Strategies and stakeholders: minority recruitment in cancer genetics research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Native Hawaiian preferences for informed consent and disclosure of results from genetic research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Racial differences in beliefs about genetic screening among patients at inner-city neighborhood health centers.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Differences between African Americans and Whites in their attitudes toward genetic testing for Alzheimer's disease

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Consent for genetic research in a general population: the NHANES experience

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

The debate over research on stored biological samples: what do sources think?

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Attitudes and beliefs of African Americans toward participation in medical research

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Pilot study on patients' and spouses' attitudes toward potential genetic testing for bipolar disorder.

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

29 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Assessing the understanding of biobank participants.

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Subjects matter: a survey of public opinions about a large genetic cohort study

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

How culture and science make race "genetic": motives and strategies for discrete categorization of the continuous and heterogeneous.

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Attitudes and perceptions of patients towards methods of establishing a DNA biobank

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research.

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Through the community looking glass: reevaluating the ethical and policy implications of research on adolescent risk and sociopathology.

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3461227

Public willingness to participate in and public opinions about genetic variation research: a review of the literature

22 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1007%2FS12687-012-0091-3

10.1007/S12687-012-0091-3

21 January 2018

Identifiers

DOI

1 reference

13 August 2017

1 reference

PMC publication ID

3461227

13 August 2017

PubMed publication ID

22454259

1 reference

PMC publication ID

3461227