Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem? (Q38072659)

28 August 2017

Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem? (English)

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inferred from citation network

28 August 2017

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Kristin Solum Steinsbekk

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1

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28 August 2017

Bjørn Kåre Myskja

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2

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28 August 2017

Berge Solberg

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3

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28 August 2017

language of work or name

English

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publication date

9 January 2013

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European Journal of Human Genetics

28 August 2017

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28 August 2017

21

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28 August 2017

9

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28 August 2017

897-902

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To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

28 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Power to the people: a wiki-governance model for biobanks

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

From patients to partners: participant-centric initiatives in biomedical research

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Can Broad Consent be Informed Consent?

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

From single biobanks to international networks: developing e-governance

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Active choice but not too active: public perspectives on biobank consent models.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Broadening consent--and diluting ethics?

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Should donors be allowed to give broad consent to future biobank research?

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

DNA databanks and consent: a suggested policy option involving an authorization model

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

False hopes and best data: consent to research and the therapeutic misconception

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Preventing overdiagnosis: how to stop harming the healthy

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

In defense of broad consent.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Consent and research governance in biobanks: evidence from focus groups with medical researchers

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Research ethics: Treat donors as partners in biobank research.

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Relating to participants: how close do biobanks and donors really want to be?

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Ethical endgames: broad consent for narrow interests; open consent for closed minds.

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

The consent problem within DNA biobanks.

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Pharmacogenetics: the Rx perspective.

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Biobanks, consent and claims of consensus

31 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Broad consent is informed consent

1 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3746258

Informational privacy, consent and the “control” of personal data

1 October 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FEJHG.2012.282

First genetic trust banks on genes

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/23299918

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FEJHG.2012.282

inferred from DOI database lookup

7 January 2021

based on heuristic

Science for the post-normal age

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FEJHG.2012.282

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2012.282

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Dimensions Publication ID

28 August 2017

0 references

1 reference

28 August 2017

PubMed publication ID

23299918

1 reference