The development of a preference-setting model for the return of individual genomic research results (Q45304654)

11 December 2017

title

The development of a preference-setting model for the return of individual genomic research results (English)

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11 December 2017

Ingrid A Holm

8

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Robert C. Green

6

object named as

Robert C Green

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11 December 2017

5

Elissa R Weitzman

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11 December 2017

Phoebe L Bacon

1

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11 December 2017

Erin D Harris

2

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11 December 2017

Sonja I Ziniel

3

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11 December 2017

Sarah K Savage

4

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Noelle L Huntington

7

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11 December 2017

publication date

20 February 2015

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Journal of Empirical Research on Human Research Ethics

11 December 2017

published in

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11 December 2017

volume

10

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11 December 2017

issue

2

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11 December 2017

page(s)

107-120

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Return of incidental findings in genomic medicine: measuring what patients value--development of an instrument to measure preferences for information from next-generation testing (IMPRINT).

11 December 2017

cites work

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https://api.crossref.org/works/10.1177%2F1556264615572092

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Health behavior changes after genetic risk assessment for Alzheimer disease: The REVEAL Study

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Evaluating the utility of personal genomic information

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Genetic susceptibility testing for Alzheimer disease: motivation to obtain information and control as precursors to coping with increased risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Disclosure of APOE genotype for risk of Alzheimer's disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Evaluation of the Validity and Utility of Genetic Testing for Rare Diseases

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Personal utility and genomic information: look before you leap

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Population studies: return of research results and incidental findings Policy Statement

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Medicine. Reestablishing the researcher-patient compact.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Broadening research consent in the era of genome-informed medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Disclosing individual genetic results to research participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Genetic risk assessment for adult children of people with Alzheimer's disease: the Risk Evaluation and Education for Alzheimer's Disease (REVEAL) study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Tiered disclosure options promote the autonomy and well-being of research subjects.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Disclosing individual results of clinical research: implications of respect for participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

The past, present, and future of the debate over return of research results and incidental findings

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Self-guided management of exome and whole-genome sequencing results: changing the results return model

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Parents' preferences for return of results in pediatric genomic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264615572092

21 January 2018

Identifiers

DOI

10.1177/1556264615572092

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11 December 2017

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