Experiences of parents and patients with the timing of Mucopolysaccharidosis type I (MPS I) diagnoses and its relevance to the ethical debate on newborn screening (Q58664563)
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scientific article published on 16 August 2012
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English | Experiences of parents and patients with the timing of Mucopolysaccharidosis type I (MPS I) diagnoses and its relevance to the ethical debate on newborn screening |
scientific article published on 16 August 2012 |
Statements
Experiences of parents and patients with the timing of Mucopolysaccharidosis type I (MPS I) diagnoses and its relevance to the ethical debate on newborn screening (English)
Minke H de Ru
Machtelt G Bouwman
Frits A Wijburg
Myra C B van Zwieten
16 August 2012
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