Understanding What Information Is Valued By Research Participants, And Why (Q92108868)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

title

Understanding What Information Is Valued By Research Participants, And Why (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

3

Rebecca N Jerome

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

5

Jill M Pulley

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

author name string

Consuelo H Wilkins

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

Brandy M Mapes

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

Victoria Villalta-Gil

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

Paul A Harris

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

publication date

1 March 2019

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

volume

38

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

issue

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

page(s)

399-407

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

A Tale of 2 Constituencies: Exploring Patient and Clinician Perspectives in the Age of Big Data

26 April 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Return of Research Results to Study Participants: Uncharted and Untested

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Views Of Primary Care Providers On Testing Patients For Genetic Risks For Common Chronic Diseases.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Developing Pharmacogenomic Reports: Insights from Patients and Clinicians.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Graphics help patients distinguish between urgent and non-urgent deviations in laboratory test results

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Genomics is failing on diversity

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

The significant impact of education, poverty, and race on Internet-based research participant engagement.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Was it worth it? Patients' perspectives on the perceived value of genomic-based individualized medicine

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Design Features of Explicit Values Clarification Methods: A Systematic Review

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Return of genetic testing results in the era of whole-genome sequencing

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Numeracy and literacy independently predict patients' ability to identify out-of-range test results

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

A framework for analyzing the ethics of disclosing genetic research findings

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Personal utility in genomic testing: is there such a thing?

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

What does the duty to warn require?

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Researchers' views on return of incidental genomic research results: qualitative and quantitative findings

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

The right tool is what they need, not what we have: a taxonomy of appropriate levels of precision in patient risk communication.

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

ResearchMatch: a national registry to recruit volunteers for clinical research

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

Disclosing individual results of clinical research: implications of respect for participants

23 February 2021

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=6706772

10.1377/HLTHAFF.2018.05046

23 February 2021

Identifiers

DOI

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30830824%20AND%20SRC:MED&resulttype=core&format=json

26 April 2020

PubMed publication ID

30830824

1 reference