Return of individual research results and incidental findings: facing the challenges of translational science (Q27026989)

Crossref

language of work or name

1 reference

2013

1 reference

Annual Review of Genomics and Human Genetics

published in

1 reference

volume

14

1 reference

issue

1

0 references

page(s)

557-77

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A public resource facilitating clinical use of genomes

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Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

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Offering aggregate results to participants in genomic research: opportunities and challenges

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Public expectations for return of results from large-cohort genetic research

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The Role of Law in the Debate over Return of Research Results and Incidental Findings: The Challenge of Developing Law for Translational Science

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The Informed Cohort Oversight Board: From Values to Architecture

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Mapping the incidentalome: estimating incidental findings generated through clinical pharmacogenomics testing.

28 September 2017

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An informatics approach to analyzing the incidentalome

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Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives

28 September 2017

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Return of research results from genomic biobanks: cost matters

28 September 2017

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Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

28 September 2017

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Population studies: return of research results and incidental findings Policy Statement

28 September 2017

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Secondary variants in individuals undergoing exome sequencing: screening of 572 individuals identifies high-penetrance mutations in cancer-susceptibility genes

28 September 2017

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets

28 September 2017

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Taking aims seriously: repository research and limits on the duty to return individual research findings

28 September 2017

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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

28 September 2017

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Intersection of biobanking and clinical care: should discrepant diagnoses and pathological findings be returned to research participants?

28 September 2017

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Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project

28 September 2017

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Taxonomizing, sizing, and overcoming the incidentalome

28 September 2017

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The legal risks of returning results of genomics research

28 September 2017

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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

28 September 2017

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Biobanking and deceased persons

28 September 2017

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Children and biobanks: a review of the ethical and legal discussion.

28 September 2017

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Research ethics. Research practice and participant preferences: the growing gulf.

28 September 2017

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

28 September 2017

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Offering individual genetic research results: context matters

28 September 2017

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Principles of human subjects protections applied in an opt-out, de-identified biobank

28 September 2017

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Custodianship as an ethical framework for biospecimen-based research

28 September 2017

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Prospective biorepository participants' perspectives on access to research results

28 September 2017

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Incidental findings and ancillary-care obligations

28 September 2017

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Managing incidental findings in human subjects research: analysis and recommendations

28 September 2017

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The uneasy ethical and legal underpinnings of large-scale genomic biobanks

28 September 2017

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Ethics. Incidental findings in brain imaging research

28 September 2017

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The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

28 September 2017

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The charitable trust as a model for genomic biobanks

28 September 2017

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The debate over research on stored biological samples: what do sources think?

28 September 2017

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When should an investigator share raw data with the subjects?

28 September 2017

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Clinically serious abnormalities found incidentally at MR imaging of the brain: data from the Cardiovascular Health Study

28 September 2017

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Return of results in genomic biobank research: ethics matters

28 September 2017

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Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.

28 November 2018

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International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

28 November 2018

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Engaging children in genomics research: decoding the meaning of assent in research

28 November 2018

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Familial communication of research results: a need to know?

28 November 2018

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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

28 November 2018

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Human genome 10th anniversary. What would you do?

28 November 2018

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“Human Non-Subjects Research”: Privacy and Compliance

28 November 2018

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Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).

28 November 2018

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Subjects matter: a survey of public opinions about a large genetic cohort study

28 November 2018

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Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

28 November 2018

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Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study.

28 November 2018

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Medicine. Reestablishing the researcher-patient compact.

28 November 2018

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Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.

28 November 2018

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CT Colonography Reporting and Data System: A Consensus Proposal

28 November 2018

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The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects

28 November 2018

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Incidental findings on pediatric MR images of the brain

28 November 2018

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28 November 2018

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Solidarity and equity: new ethical frameworks for genetic databases

28 November 2018

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Incidental findings on brain magnetic resonance imaging from 1000 asymptomatic volunteers

28 November 2018

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Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors

28 November 2018

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Medicine. The ultimate genetic test

28 November 2018

1 reference

https://pubmed.ncbi.nlm.nih.gov/23875796

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

ACOG committee opinion no. 527: Personalized genomic testing for disease risk

1 reference

https://pubmed.ncbi.nlm.nih.gov/23875796

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1146/ANNUREV-GENOM-091212-153506

1 reference

release_hqgnqwue3vg3bpown5vkhls2ge

Fatcat ID

0 references

1 reference

1 reference

PubMed publication ID

23875796

1 reference