Ethics of genetic and biomarker test disclosures in neurodegenerative disease prevention trials (Q35400583)

8 August 2017

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title

Ethics of genetic and biomarker test disclosures in neurodegenerative disease prevention trials (English)

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8 August 2017

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2

Jason Karlawish

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8 August 2017

1

Scott Y H Kim

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8 August 2017

Benjamin E Berkman

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8 August 2017

language of work or name

English

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publication date

11 March 2015

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8 August 2017

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8 August 2017

volume

84

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8 August 2017

issue

14

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8 August 2017

page(s)

1488-1494

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The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research

8 August 2017

cites work

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27 July 2018

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Return of genomic results to research participants: the floor, the ceiling, and the choices in between

27 July 2018

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27 July 2018

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27 July 2018

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27 July 2018

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A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases

27 July 2018

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The future in clinical genetics: affective forecasting biases in patient and clinician decision making

27 July 2018

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Recommendations for returning genomic incidental findings? We need to talk!

27 July 2018

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The impact of the availability of prevention studies on the desire to undergo predictive testing in persons at risk for autosomal dominant Alzheimer's disease.

27 July 2018

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New approaches to genetic counseling and testing for Alzheimer's disease and frontotemporal degeneration

27 July 2018

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To know or not to know: an update of the literature on the psychological and behavioral impact of genetic testing for Alzheimer disease risk

27 July 2018

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27 July 2018

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27 July 2018

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27 July 2018

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Narratives that address affective forecasting errors reduce perceived barriers to colorectal cancer screening

27 July 2018

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27 July 2018

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Views of discrimination among individuals confronting genetic disease

27 July 2018

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Disclosure of APOE genotype for risk of Alzheimer's disease

27 July 2018

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Comparing test-specific distress of susceptibility versus deterministic genetic testing for Alzheimer's disease

27 July 2018

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Affective forecasting: an unrecognized challenge in making serious health decisions

27 July 2018

1 reference

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Associations between anticipated reactions to genetic test results and interest in genetic testing: will self-selection reduce the potential for harm?

27 July 2018

1 reference

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Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease

27 July 2018

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27 July 2018

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Emotional reactions to predictive testing in Alzheimer's disease and other inherited dementias

27 July 2018

1 reference

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Psychological impact of genetic testing for Huntington's disease: an update of the literature

27 July 2018

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What makes clinical research ethical?

27 July 2018

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Ethics and Clinical Research

27 July 2018

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Researchers test strategies to prevent Alzheimer disease.

27 July 2018

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Appropriate use criteria for amyloid PET: a report of the Amyloid Imaging Task Force, the Society of Nuclear Medicine and Molecular Imaging, and the Alzheimer's Association

26 September 2018

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26 September 2018

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Disclosing genetic test results to family members

26 September 2018

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Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test

26 September 2018

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26 September 2018

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26 September 2018

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12 December 2020

Interest in predictive testing for Parkinson's disease: impact of neuroprotective therapy

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12 December 2020

Disclosures of Huntington disease risk within families: patterns of decision-making and implications

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12 December 2020

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12 December 2020

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12 December 2020

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Identifiers

DOI

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8 August 2017

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8 August 2017

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