Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease (Q37386039)

20 August 2017

Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease (English)

1 reference

20 August 2017

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4

Gerry Veenstra

0 references

Jane S. Paulsen

Jane S Paulsen

6

0 references

Jan M Friedman

Jan M Friedman

3

0 references

Joan Bottorff

Joan L Bottorff

7

0 references

Michael R. Hayden

Michael R Hayden

8

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author name string

Yvonne Bombard

1

1 reference

20 August 2017

JoAnne Palin

2

1 reference

20 August 2017

Susan Creighton

5

1 reference

20 August 2017

Canadian Respond-HD Collaborative Research Group

9

1 reference

20 August 2017

10 November 2010

1 reference

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics

20 August 2017

1 reference

20 August 2017

156B

1 reference

20 August 2017

1

1 reference

20 August 2017

19-27

1 reference

Biological and clinical manifestations of Huntington's disease in the longitudinal TRACK-HD study: cross-sectional analysis of baseline data

20 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Civilian and military genetics: nondiscrimination policy in a post-GINA world

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Detection of Huntington's disease decades before diagnosis: the Predict-HD study

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Process and outcome in communication of genetic information within families: a systematic review

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Experiences of discrimination: validity and reliability of a self-report measure for population health research on racism and health

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Family communication about genetic risk: the little that is known

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Predictive testing for Huntington disease: nonparticipants compared with participants in the Dutch program.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Discrimination as a consequence of genetic testing

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Managing genetic discrimination: strategies used by individuals found to have the Huntington disease mutation

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Dilemmas of anonymous predictive testing for Huntington disease: privacy vs. optimal care

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Neurodegenerative disease. Genetic discrimination in Huntington disease

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Genetic discrimination in Huntington's disease

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Self-reported racial discrimination and substance use in the Coronary Artery Risk Development in Adults Study

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Genetic discrimination: the clinician perspective

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Genetic testing and Huntington's disease: issues of employment

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

A Survey of Genetic Counselors' Strategies for Addressing Ethical and Professional Challenges in Practice

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

How young people find out about their family history of Huntington's disease

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3860279

Health insurance and discrimination concerns and BRCA1/2 testing in a clinic population

3 December 2018

1 reference

12 December 2020

Race, socioeconomic status, and perceived discrimination among healthy women

1 reference

12 December 2020

To tell or not to tell: barriers and facilitators in family communication about genetic risk

1 reference

12 December 2020

Predictive genetic test decisions for Huntington's disease: context, appraisal and new moral imperatives

1 reference

12 December 2020

Disclosures of Huntington disease risk within families: patterns of decision-making and implications

1 reference

12 December 2020

Identifiers

DOI

10.1002/AJMG.B.31130

1 reference

20 August 2017

1 reference

20 August 2017

1 reference